Recruiting · registry status

The years before a Parkinson's diagnosis

Researchers are reviewing records and interviewing people to understand earlier symptoms, care use and costs.

Learning by observing or collecting information · Study reference: NL-OMON27525

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

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Results reported

Start (reported date): 2010-03-15

Planned dates can move. A study finishing does not tell us when a paper will be published.

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Changes we have recorded

2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age range not listed · Ask the team who can join

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: Not reported

Inclusion criteria: 1. Idiopathic Parkinson's Disease according to the U.K. Parkinson's Disease Society Brain Bank Criteria; 2. Diagnosis made in 2007, 2008, 2009 or 2010; 3. Written informed consent. Exclusion criteria: Atypical Parkinson's Disease (for instance vascular parkinsonism, drug-induced parkinsonism, multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy).

Full study name & original research details

Official study title

The preclinical phase of idiopathic Parkinson's Disease; A retrospective study to evaluate the motor and non-motor symptoms, duration, health care resource use and costs over a 5-year period prior to th diagnosis is made.

Short title used by the registry

The prodromal phase of Parkinson's Disease; Symptoms, duration, health care resource use and costs over a 5-year period prior to the diagnosis is made. De vroege beginfase van de ziekte van Parkinson; Symptomen, duur, zorgconsumptie en gezondheidszorgkosten in de 5 jaar voorafgaande aan het stellen van de diagnose.

Original description

Intervention: None. Primary outcome: Information is obtained from medical records of General Practitioners, from hospital medical records and during a standardized interview with the patients. To ensure the accuracy of recall information during the interview, particularly for some patients with cognitive deficits, patients are asked to be accompanied by a caregiver. These information is obtained over a 5-year period prior the the year the diagnosis is made. Investigated will be the symptoms, the duration of the preclinical phase, the medical health care resource use and costs. Secondary outcome: Cost-predicting factors, for instance patient characteristics and medical health care resource use will be identified.

Conditions reported: Idiopathic Parkinson's Disease, preclinical phase, health care resource use, costs Ziekte van Parkinson, preklinische fase, zorgconsumptie, gezondheidszorgkosten

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

NL-OMON · NL-OMON27525 ↗ — Recruiting; WHO ICTRP processed 2024-02-28; checked 2026-10-11

Study type: Observational
Interventions: None.
Phases: Not reported
Sponsor: Atrium Medisch Centrum Parkstad
Start date reported by registry: 2010-03-15 (reported)

Registry updated: Not reported · Status last verified by the registry submitter: Not reported

Registry records retrieved 2026-10-11 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

V.J.H. Rouvroije · +31 (0)45 5766700 · vjh.rouvroije@gmail.com

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

No locations reported. Ask the study team where participation is available.

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.