Recruiting · registry status

Understanding the demands of caring for someone with Parkinson’s

Researchers study the experiences and responsibilities of primary carers of people with Parkinson’s.

Learning by observing or collecting information · Study reference: NCT06892717

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

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Looking for volunteers

Start (reported actual date): 2025-02-10
Main measurements finished (planned): 2025-04-10
Study finished (planned): 2025-04-10

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded

2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Ages 40 years to 80 years · Ask the team who can join

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Age between 40-80 years * Diagnosed with Parkinson's disease, Hoehn and Yahr stage 2-5 * Requires assistance in daily activities * Informal caregiver providing care (unpaid, typically a family member such as a spouse or child) * Caregiver has sufficient proficiency in Turkish to understand and respond to the study questions Exclusion Criteria: * Presence of any additional neurodegenerative disease other than Parkinson's disease * Diagnosis of Chronic Obstructive Pulmonary Disease (COPD) * Advanced heart failure classified as New York Heart Association (NYHA) Class IV (symptoms at rest) * Active cancer disease * History of stroke causing limitations in daily life * Immobility due to reasons other than Parkinson's disease

Full study name & original research details

Official study title

Caregiver Burden and Associated Factors in Parkinson's Disease

Short title used by the registry

Caregiver Burden in Parkinson's Disease

Original description

Primary caregivers of patients diagnosed with idiopathic Parkinson's disease will be included in the study. A total of 43 participants will be recruited. At the beginning of the study, demographic data and clinical characteristics of the patients, including disease stage, history of falls, presence of fractures, presence and severity of pain, comorbidities, and medication use, will be recorded. Subsequently, caregivers' age, gender, occupation, relationship to the patient, caregiving duration, and their own comorbidities will be assessed. Sleep problems will be evaluated using the Insomnia Severity Index (ISI), while symptoms related to depression and anxiety will be assessed with the Hospital Anxiety and Depression Scale (HADS). Caregiver burden will be examined using the Zarit Caregiver Burden Scale.

Conditions reported: Parkinson Disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

ClinicalTrials.gov · NCT06892717 ↗ — RECRUITING; checked 2026-10-13
ClinicalTrials.gov · NCT06892717 ↗ — Recruiting; WHO ICTRP processed 2025-03-31; checked 2026-10-13

Study type: Observational
Interventions: Not reported
Phases: Not reported
Sponsor: Beylikduzu State Hospital
Start date reported by registry: 2025-02-10 (actual)

Registry updated: 2025-03-25 · Status last verified by the registry submitter: 2025-03

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

No central contact is listed. Check the location contacts or the official registry record.

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Beylikdüzü State Hospital

Istanbul, Beylikdüzü, Turkey (Türkiye)

Recruiting

Büşra Şirin · 02124443322 · bsrn080@gmail.com

Büşra Şirin Ahısha, MD

Nurdan Paker, Prof

Facility not reported

Turkey

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.