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Coordinating Parkinson’s care across a regional network

Researchers evaluate a network that brings together different health professionals and uses remote assessments to coordinate Parkinson’s care.

Testing a treatment or activity · Study reference: NCT06479083

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

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Looking for volunteers

Start (reported actual date)
2024-07-01
Main measurements finished (planned)
2025-10-31
Study finished (planned)
2027-01-31

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded
  • 2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

Protocol of the interdisciplinary and intersectoral randomized controlled trial in Parkinson patients in a specialized network in Germany: the INSPIRE Trial
This paper mentions the study ID; the relationship needs review · 2026

Protocol of the interdisciplinary and intersectoral randomized controlled trial in Parkinson patients in a specialized network in Germany: the INSPIRE Trial.
Listed by the registry as research derived from the study · 2026

Who can join?

Ages 30 years to 85 years · Does not accept healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Diagnosis of primary Parkinson's syndrome (G20.-) or atypical Parkinson's syndrome (G23.-, according to the current diagnostic criteria of the Movement Disorder Society, including the criteria of at least bradykinesia and rigidity or resting tremor must be present) * In the care regions of Hesse and Rhineland-Palatinate * Ability to give consent present Exclusion Criteria: \- Severe dementia * Severe depression * Psychoses or other psychiatric or medical comorbidities that could affect the smooth implementation of the study protocol (e.g. tumor disease with limited life expectancy, need for dialysis, etc.) * Drug or alcohol addiction * Women who are pregnant or breastfeeding * Simultaneous participation in another interventional treatment study * Illiteracy or insufficient language skills
Full study name & original research details

Official study title

Interdisciplinary and Intersectoral Telemedicine Evaluation, Coordination and Treatment in the Rhine Main+ Parkinson's Network

Short title used by the registry

Interdisciplinary + Intersectoral Telemedicine Evaluation, Coordination + Treatment in RhineMain+ Parkinson's Network

Original description

Project objective: To improve the health care of Parkinson's disease patients in the ParkinsonNetz RheinMain+. Hypothesis: Through the interdisciplinary and cross- sectoral networking in a tele medical network and the coordinating function of an "advanced practice nurse" (APN) specially trained for Parkinson's disease, the process quality within the network is increased and the individual health status is positively influenced.

Further description from the registry

To effectively influence the long-term course of Parkinson´s a synergistic application of an individualized therapy program, which is tailored specifically to the symptoms and disease stages, is needed. The central element of the new form of care is the implementation of a tele medical evaluation and coordination function, which controls individualized treatment processes within the network. The individualized evaluation and coordination of treatment paths is carried out within the already existing Parkinson's network RheinMain+ by a non-physician medical specialist (APN) specially trained for the indication Parkinson's disease. In-depth assessments of the individual disease situation of the patients will take place. Based on these assessments, an evidence-based and patient-centered treatment and care plan is developed. The treatment plans are monitored, controlled and evaluated by the APNs using audiovisual or tele medical communication. In addition, APNs are empowered to initiate treatment interventions necessary to implement clinical guidelines and standards, and to take charge of these interventions as part of delegation processes. The APNs ensure that patients are cared for in accordance with needs and guidelines in all areas of care. To this end, they offer, among other things, training in the handling of patients with Parkinson's disease for other professional groups involved in the treatment process and not only have the patients in mind, but also include relatives and the supporting team.

Conditions reported: Parkinson Disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

Study type
Interventional
Interventions
New Intervention form including; Standard treatment
Phases
NA
Sponsor
Johannes Gutenberg University Mainz
Start date reported by registry
2024-07-01 (actual)

Registry updated: 2025-07-23 · Status last verified by the registry submitter: 2025-07

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Sergiu Groppa, Prof. · +49 613117 · Sergiu.Groppa@uks.eu

Franziska Beyer · +49 613117 · inspire-info@parkinsonnetzwerk.de

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Universtity of Saarland, Campus Homburg, Dept. of Neurology

Homburg, Germany

Recruiting

Sergiu Groppa · +49 68411624 · Sergiu.Groppa@uks.eu

INSPIRE-PNRM+ Neuroimaging Center (NIC) University Medical Center of the Johannes Gutenberg University Mainz

Mainz, Germany

Recruiting

Franziska Beyer · +49 (0) 6131 17 · inspire-info@parkinsonnetzwerk.de

Selina Frühwald · +49 (0) 6131 17 · inspire-info@parkinsonnetzwerk.de

Sergiu Groppa

Facility not reported

Germany

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.