Recruiting · registry status

Donating samples to support laboratory research

Researchers use donated samples, such as blood or skin cells, to make cells for studying diseases in the laboratory.

Learning by observing or collecting information · Study reference: NCT06203106

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

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Follow this study

Looking for volunteers

Start (reported actual date): 2022-11-10
Main measurements finished (planned): 2045-11-10
Study finished (planned): 2045-11-10

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded

2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age 30 days and over · Does not accept healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Age 30 days or older. * Diagnosis and/or medical history of a condition, disease, genetic background, or trait of interest or healthy control. * Adults with decisional capacity must provide written informed consent unless physical limitations preclude signing. * Adults without decisional capacity to consent must a have diagnosis of Amyotrophic Lateral Sclerosis (ALS), Alzheimer's Disease and Related Dementias (AD/ADRD); Batten Disease, Corticobasal Degeneration (CBD), Dementia, Frontotemporal Dementia (FTD), Huntington Disease, Lewy Body Disease, Multiple Sclerosis, Multiple System Atrophy, Parkinson's Disease (PD), Parkinsonism, and/or Progressive Supranuclear Palsy, and must provide assent; a legally authorized representative (LAR) must also provide written informed consent. * Minors undergoing skin collection for research purposes must have a condition, disease, genetic background, or trait of interest and parental/guardian consent. * Minors undergoing blood, and/or saliva collection for research purposes may have a condition, disease, genetic background, or trait of interest or serve as a healthy control and must have an available parent/guardian to provide consent. * Minors transferring biological samples and associated data from a procedure outside of the research may have a condition, disease, genetic background, or trait of interest or serve as a healthy control and must have an available parent/guardian to provide consent. Exclusion Criteria: * Wards of the state. * For prospective skin samples: history of keloid formation, coagulation disorder, or allergy to the anesthetic. * For prospective blood samples: history of coagulation disorder. * For all prospective sample collections: 1) Subjects who refuse to adhere to NYSCF's and/or a collection site's safety protocol(s) will be excluded; 2) Subjects with an AIDS diagnosis and CD4 count of less than 200 cells per microliter (mcL) of blood will be excluded due to increased risk of infection.

Full study name & original research details

Official study title

NYSCF Scientific Discovery Biobank

Original description

The New York Stem Cell Foundation (NYSCF) Research Institute is performing this research to accelerate diverse disease research using cells from the body (such as skin or blood cells) to make stem cells and other types of cells, conduct research on the samples, perform genetic testing, and store the samples for future use. Through this research, researchers hope to identify future treatments or even cures for the major diseases of our time.

Further description from the registry

Researchers at the New York Stem Cell Foundation (NYSCF) Research Institute study diverse diseases, conditions, and traits by creating stem cells from biological samples. These "pluripotent" stem cells can become any cell in the human body, including cells that may be difficult, invasive, or impossible to obtain directly. Additionally, researchers perform genetic testing to learn more about DNA, a material in most cells that contains instructions for the body's development and functions (such as traits like eye color and risk of certain diseases). A piece of DNA that determines the specific role of a cell is called a "gene." If the instructions in a gene are abnormal, this can lead to disease. Participation in the study involves: (1) completion of health questionnaires, (2) providing a skin and/or blood sample from which stem cells may be created, (3) collection of a saliva sample for genetic analysis, and (4) possible future followup to provide additional information or learn about other research studies. This study is not a clinical trial.

Conditions reported: ALS; Amyotrophic Lateral Sclerosis; Alzheimer Disease; Alzheimer Disease, Early Onset; Alzheimer Disease, Late Onset; Batten Disease; Corticobasal Degeneration; Dementia; Frontotemporal Dementia; Huntington Disease; Lewy Body Disease; Multiple Sclerosis; Multiple System Atrophy; Parkinson Disease; Parkinson's Disease and Parkinsonism; Progressive Supranuclear Palsy; INAD; Diabetes; Diabetes Mellitus; Diabetes Mellitus, Type 2; Diabetes Mellitus, Type 1; Macular Degeneration; Ovarian Cancer; Cervical Cancer; Uterine Cancer; Vaginal Cancer; Vulvar Cancer; PTSD; Post Traumatic Stress Disorder

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

ClinicalTrials.gov · NCT06203106 ↗ — RECRUITING; checked 2026-10-13
ClinicalTrials.gov · NCT06203106 ↗ — Recruiting; WHO ICTRP processed 2025-03-10; checked 2026-10-13

Study type: Observational
Interventions: Biological Sample Collection
Phases: Not reported
Sponsor: New York Stem Cell Foundation Research Institute
Start date reported by registry: 2022-11-10 (actual)

Registry updated: 2025-03-03 · Status last verified by the registry submitter: 2025-02

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Clinical Research Office · 212-927-1801 · clinicalresearch@nyscf.org

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

New York Stem Cell Foundation Research Institute

New York, New York, United States

Recruiting

Clinical Research Office · 212-927-1801 · clinicalresearch@nyscf.org

Laura Andres-Martin, PhD

Facility not reported

United States

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.