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Recruiting · registry status

Sharing experiences of living with Parkinson’s through surveys

The Parkinson’s Foundation periodically surveys people with Parkinson’s, care partners and medical professionals about different aspects of life with the condition.

Learning by observing or collecting information · Study reference: NCT05066763

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

Open the official registry record ↗

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Looking for volunteers

Start (reported actual date)
2021-04-02
Main measurements finished (planned)
2030-12
Study finished (planned)
2030-12

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded
  • 2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age 18 years and over · Does not accept healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Willingness to be contacted by the Parkinson's Foundation for surveys and any future research opportunities * Anyone who self-reports that they have a diagnosis of Parkinson's disease * Care partner of a person with Parkinson's disease * Any health professional that regularly works with people with Parkinson's disease * 18 years of age or older Exclusion Criteria: * People who report that they do not have a diagnosis of Parkinson's disease, are not a care partner to someone with PD or do not work with people with PD in the health setting * An individual younger than 18 years of age
Full study name & original research details

Official study title

Parkinson's Foundation Surveys

Original description

Parkinson's Foundation Surveys is an initiative seeking to periodically survey people with Parkinson's disease (PD), their care partners and medical professionals to better understand specific aspects of living with PD.

Conditions reported: Parkinson Disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

Study type
Observational
Interventions
Non-interventional
Phases
Not reported
Sponsor
Parkinson's Foundation
Start date reported by registry
2021-04-02 (actual)

Registry updated: 2021-10-04 · Status last verified by the registry submitter: 2021-09

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

No central contact is listed. Check the location contacts or the official registry record.

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Parkinson's Foundation

Miami, Florida, United States

Recruiting

Megan Feeney, MPH · 646-388-7674 · mfeeney@parkinson.org

James C Beck, PhD

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.