Recruiting · registry status

Sharing health information online to help Parkinson’s research

People with and without Parkinson’s report information online so researchers can better understand who develops the condition and how it changes.

Learning by observing or collecting information · Study reference: NCT05065060

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

Open the official registry record ↗

Who can join?

Age 18 years and over · Also accepts healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Parkinson Disease (PD) Participants: * Male or female age 18 years or older. * Has received a diagnosis of Parkinson's disease Participants without PD: * Male or female age 18 years or older. * Has not received a diagnosis of Parkinson's disease

Full study name & original research details

Official study title

Parkinson's Progression Markers Initiative Online Study (PPMI Online)

Short title used by the registry

Parkinson Progression Marker Initiative Online (PPMI Online)

Original description

Parkinson Progression Marker Initiative Online (PPMI Online) is an observational study collecting participant reported information from people with and without Parkinson's disease (PD), for the goal of better understanding risk and predictive factors for PD. PPMI Online is part of the broader Parkinson Progression Marker Initiative aimed at identifying markers of disease progression for use in clinical trials of therapies to reduce progression of PD disability.

Further description from the registry

PPMI is a broad program that is expanding the goals of the original PPMI study, and will include this PPMI Online protocol, as well the PPMI Clinical \[NCT04477785\], PPMI Remote, PPMI Digital protocols (with external regulatory oversight). All participants in PPMI may be asked to participate in one or all of these protocols and their enrollment in these studies may occur in varying order. PPMI participants may also be asked to participate in additional PPMI companion studies (as they are developed), which may only involve a subset of PPMI participants based on their cohort designation

Conditions reported: Parkinson Disease

Study type: Observational
Interventions: Observation
Phases: Not reported
Sponsor: Michael J. Fox Foundation for Parkinson's Research
Start date reported by registry: 2021-07-28 (actual)

Registry updated: 2026-09-08 · Status last verified by the registry submitter: 2026-09

Registry records retrieved 2026-10-11 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

University of California, San Francisco · 877-525-7764 · info@ppmionline.org

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

UCSF Movement Disorders and Neuromodulation Center (MDNC)

San Francisco, California, United States

Recruiting

UCSF · 877-525-7764

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.