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Recruiting · registry status

Joining a register for future Parkinson’s research

The University of Delaware collects details of people willing to be contacted about future Parkinson’s research studies.

Learning by observing or collecting information · Study reference: NCT04496973

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

Open the official registry record ↗

Follow this study

Looking for volunteers

Start (reported actual date)
2020-05-28
Main measurements finished (planned)
2030-01-01
Study finished (planned)
2030-01-01

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded
  • 2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Ages 21 years to 100 years · Does not accept healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Individual 21 years old or older * A clinical diagnosis of Parkinson's disease * Interest in participating in one or more investigator-led research studies at the University of Delaware Exclusion Criteria: * Individuals with a clinical diagnosis of parkinsonism that is not considered primary (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.) * Clinical diagnosis of dementia
Full study name & original research details

Official study title

University of Delaware Participant Recruitment Registry for Parkinson's Disease Research

Short title used by the registry

University of Delaware Parkinson's Disease Registry

Original description

The purpose of this Parkinson's Disease Registry is to assist with recruitment of willing participants into future Parkinson's disease research studies at the University of Delaware.

Further description from the registry

There is an urgent need for Parkinson's Disease research due to its increasing global prevalence. Participant recruitment is a significant challenge to the success of Parkinson's disease research and we need your help more than ever in moving the field forward and improving the lives of people who have Parkinson's disease. Recruitment of study participants can be facilitated by maintaining registries of people who agree to be contacted for future studies. The purpose of the University of Delaware Participant Recruitment Registry for Parkinson's Disease Research is to create a registry that includes the contact information and basic health information pertaining the participant's diagnosis of Parkinson's disease. The registry will streamline recruitment and enrollment in a variety of research studies focusing on topics such as, but not limited to: brain changes in Parkinson's disease, balance and gait in Parkinson's disease, exercise and its effect on motor function. To be in the registry individuals must have a clinical diagnosis of Parkinson's Disease and have an interest in participating in research studies. To become a member of this registry, primary information including contact information and some general medical information are needed.

Conditions reported: Parkinson Disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

Study type
Observational
Interventions
Not reported
Phases
Not reported
Sponsor
University of Delaware
Start date reported by registry
2020-05-28 (actual)

Registry updated: 2024-05-16 · Status last verified by the registry submitter: 2024-05

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Roxana Burciu, PhD · 302-831-3066 · rgburciu@udel.edu

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

University of Delaware

Newark, Delaware, United States

Recruiting

Roxana Burciu, PhD · 302-831-3066 · rgburciu@udel.edu

Facility not reported

United States

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.