Recruiting · registry status

Looking for genes linked to Parkinson’s

Researchers study genetic differences that may increase the risk of Parkinson’s and related conditions.

Learning by observing or collecting information · Study reference: NCT01558479

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

Open the official registry record ↗

Follow this study

Looking for volunteers

Start (reported actual date): 2009-09
Main measurements finished (planned): 2026-10-31
Study finished (planned): 2026-10-31

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded

2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age 18 years and over · Also accepts healthy volunteers

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion Criteria: * Over 18 years of age * Member of a family in which there are two or more living individuals who have been diagnosed with Parkinson's disease Exclusion Criteria: * Under 18 years of age

Full study name & original research details

Official study title

The Parkinson's Genetic Research Study (PaGeR)

Short title used by the registry

The Parkinson's Genetic Research Study

Original description

The Parkinson's Genetic Research Study (PaGeR), headed by Dr. Cyrus Zabetian, is searching for genes that increase the risk of developing Parkinson's disease (PD) and related disorders. The study is a joint effort by neurologists and researchers across the United States and is sponsored by the National Institutes of Health. The coordinating center for PaGeR is located at the University of Washington and the VA Puget Sound Health Care System in Seattle.

Further description from the registry

PaGeR is focusing on families in which two or more people have been diagnosed with PD. Past research suggests that such "multiplex" families might hold the key to the discovery of new PD genes. To take part in PaGeR, participants will be asked to complete a questionnaire and to undergo an interview, a neurological exam, a short memory test, and a blood draw. Enrollment in the study usually takes between one and two hours. There is no cost to participate, and all study information is kept strictly confidential. There are a number of designated sites across the country where families can enroll. However, for family members who are unable to travel to one of these sites, other arrangements can be made.

Conditions reported: Parkinson's Disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

ClinicalTrials.gov · NCT01558479 ↗ — RECRUITING; checked 2026-10-13

Study type: Observational
Interventions: Not reported
Phases: Not reported
Sponsor: University of Washington
Start date reported by registry: 2009-09 (actual)

Registry updated: 2024-05-14 · Status last verified by the registry submitter: 2024-05

Registry records retrieved 2026-10-13 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Jennifer Pate · 1-855-646-4221

Khryss Capawa · (206) 277-3956 · kcapawa@uw.edu

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Emory University/ Wesley Woods Health Center

Atlanta, Georgia, United States

Recruiting

Barbara Sommerfield, MSN, RN · 404-728-6944 · bsommer@emory.edu

University of Cincinnati

Cincinnati, Ohio, United States

Recruiting

Jatue Krier · 513-558-0169 · katie.krier@uc.edu

Portland VA Medical Center

Portland, Oregon, United States

Recruiting

Susan O'Connor · 503-220-8262

VA Puget Sound Health Care System

Seattle, Washington, United States

Recruiting

Jennifer Pate · 855-646-4221

Cyrus Zabetian, MD, MS

University of Washington

Seattle, Washington, United States

Recruiting

Jennifer Pate · 855-646-4221

Cyrus Zabetian, MD, MS

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.