Recruiting · registry status

Following advanced Parkinson's over time

Researchers are following symptoms, daily activities and health changes in people with advanced Parkinson's in Japan.

Learning by observing or collecting information · Study reference: JPRN-UMIN000053949

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

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Results reported

Start (reported date): 2024-04-10
Study finished (reported date): 2027-12-31

Planned dates can move. A study finishing does not tell us when a paper will be published.

Read the results reported in the registry

Changes we have recorded

2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age range not listed · Ask the team who can join

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: male and female

Inclusion criteria: Patients who met all of the following criteria were enrolled : 1) Patients diagnosed with clinically-established PD according to the International Parkinson and Movement Disorder Society (MDS) criteria 2) Patients who had been diagnosed with PD for at least 7 years 3) Patients with "Hoehn and Yahr stage IV or V" or "less than 50% on the Schwab and England scale" at the time of admission 4) Patients who were managed as outpatients for PD treatment or hospitalized within 14 days 5) Patients with a caregiver able to cooperate with the survey and who can objectively assess the patient if the patient is homebound 6) Patients whose condition has been stable for the past 14 days 7) Patients who provided written consent for inclusion in this study by the patient or a surrogate Exclusion criteria: Patients who fall under any of the following categories were excluded: 1) Patients admitted for treatment of complications 2) Patients transferred from an acute care hospital 3) Patients judged by the principal investigator or research coordinator to be inappropriate for participation in this study

Full study name & original research details

Official study title

A Japanese Multicenter Prospective Study of Prognosis in Late-Stage Parkinson's Disease (a National Hospital Organization Network collaborative study) - A Japanese Prospective Study of Prognosis in Late-Stage Parkinson's Disease

Short title used by the registry

A Study of Prognosis in Late-Stage Parkinson's Disease in Japan

Original description

Primary outcome: Changes in the MDS-UPDRS, Hoehn and Yahr stage, and Schwab and England ADL scale from baseline to 18 months Secondary outcome: 1)Baseline Motor function, Cognitive function, Nutritional status, Treatment, Quality of life of the patient/family, use of long-term care insurance, level of care required, care burden, utilization of social resources, Frequency of falls, history of fractures 2)Prognosis Survival/death, pneumonia, fractures, complications requiring hospitalization (excluding pneumonia and fractures), institutionalization (first time only), cognitive function, quality of life, burden of care, changes in care setting during 18 months.

Conditions reported: Parkinson's disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

JPRN · JPRN-UMIN000053949 ↗ — Recruiting; WHO ICTRP processed 2026-06-29; checked 2026-10-11

Study type: Observational
Interventions: Not reported
Phases: Not applicable
Sponsor: National Hospital Organization Higashinagoya National Hospital
Start date reported by registry: 2024-04-10 (reported)

Registry updated: Not reported · Status last verified by the registry submitter: Not reported

Registry records retrieved 2026-10-11 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Ikuko Aiba · 052-801-1151 · ikukoaiba0401@gmail.com

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Facility not reported

Japan

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.