Experiences of monitoring Parkinson's with digital tools
Researchers are exploring benefits, difficulties and personal concerns about health-monitoring technology.
Testing a treatment or activity · Study reference: DRKS00026693
Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓
This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.
Open the official registry record ↗Follow this study
Looking for volunteers
- Start (reported date)
- 2022-06-15
Planned dates can move. A study finishing does not tell us when a paper will be published.
No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.
Changes we have recorded
- 2026-10-11 — recruiting
These are dates we observed a change, not necessarily the dates it happened.
Papers connected to this study
No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.
Who can join?
Ages 18 years to 85 years · Ask the team who can join
These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.
Read all the rules for taking part
Sex eligibility reported by registry: all
Full study name & original research details
Official study title
Self-monitoring between empowerment and new barriers - ethical, legal, social and medical implications of mHealth technologies in the use of patients with Parkinson's Disease - mHealth_PD
Short title used by the registry
Self-monitoring between empowerment and new barriers - ethical, legal, social and medical implications of mHealth technologies in the use of patients with Parkinson's Disease
Original description
Conditions reported: G20;Parkinson disease
Registry records for this study
Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.
- German Clinical Trials Register · DRKS00026693 ↗ — Recruiting; WHO ICTRP processed 2025-04-07; checked 2026-10-14
- Study type
- Interventional
- Interventions
- Group 1: Both quantitative and qualitative methods will be used to record the acceptance of the technology by the patient groups. There will be two test points (T0, T1) to determine the acceptance of the technology before and after the use of the wearables. In addition, the health status of the test persons will be recorded at time T0 using standardised questionnaires. T0: Recording of the health status: UPDRS (Unified Parkinson Disease Rating Scale, Part III): Instrument to determine the progression of Parkinson's disease, Montreal cognitive Assessment Test (MoCA) Multidimensional screening test to detect cognitive impairment, Charlson Comorbidity Index (CCI): Instrument used to assess comorbidities of a total of 19 underlying diseases, Beck's depression inventory (BDI-II): The BDI is a psychological test to assess the severity of depressive symptoms, (PDQ-39): Measure of the health status and quality of life of patients with Parkinson's disease, (EQ-5D-5L): Measures the health-related quality of life of patients. This questionnaire measures the following dimensions: the ability to take care of oneself, daily activities (e.g. occupation, household, etc.), pain and physical discomfort, anxiety and dejection, PQoL: Quality of Life of Relatives (PQoL). It consists of 26 items and a 5-point scale from 0 (no problem) to 4 (extreme problems), Semi-structured interview to prospectively assess technology acceptance before the use of wearables. T1: Semistructured interview on technology acceptance after the use of wearables
- Phases
- N/A
- Sponsor
- Universitätsklinikum Gießen und Marburg, Standort Marburg
- Start date reported by registry
- 2022-06-15 (reported)
Registry updated: Not reported · Status last verified by the registry submitter: Not reported
Registry records retrieved 2026-10-14 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.
Contact the research team
Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.
Catharina Münte · 06421 58 65895 · catharina.muente@uni-marburg.de
Study locations
Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.
Facility not reported
Germany
Status not reportedThe original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.