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A questionnaire about difficulties after brain stimulation

Researchers are developing assessments completed by people with Parkinson's and their carers.

Learning by observing or collecting information · Study reference: DRKS00004770

Plain-language introduction written with AI from the registry; not independently checked by a clinician. Read the original details below ↓

This registry record was last updated over six months ago, or its update date is missing. Recruitment may have changed. Confirm with the team before making plans.

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Looking for volunteers

Start (reported date)
2012-10-01

Planned dates can move. A study finishing does not tell us when a paper will be published.

No results summary has been confirmed in the registry records we imported. See connected papers below; we keep checking after recruitment ends.

Changes we have recorded
  • 2026-10-11 — recruiting

These are dates we observed a change, not necessarily the dates it happened.

Papers connected to this study

No connected paper has been found yet. The tracker checks the growing library for study identifiers and registry-linked publications.

Who can join?

Age range not listed · Ask the team who can join

These are starting points, not the full rules. The research team can tell you whether the study is right for your situation.

Read all the rules for taking part

Sex eligibility reported by registry: all

Inclusion criteria: Patients with Parkinson's disease and a respective caregiver Exclusion criteria: Patients without Parkinson's disease and caregivers of patients without Parkinson's disease
Full study name & original research details

Official study title

Impairments of Parkinson's disease patients with deep brain stimulation: Development and validation of a self-report and proxy-rated questionnaire - DBS-IS

Short title used by the registry

Impairments of Parkinson's disease patients with deep brain stimulation: Development and validation of a self-report and proxy-rated questionnaire

Original description

Intervention: Group 1: Parkinson's disease patients (with and without DBS), survey with questionnaires Group 2: caregivers of Parkinson's disease patients (with and without DBS), survey with questionnaires Primary outcome: Development and validation of a self-report and proxy-rated questionnaire

Conditions reported: G20;Parkinson disease

Registry records for this study

Records are joined using registration identifiers. Titles alone do not establish that two studies are the same.

Study type
Observational
Interventions
Group 1: Parkinson's disease patients (with and without DBS), survey with questionnaires Group 2: caregivers of Parkinson's disease patients (with and without DBS), survey with questionnaires
Phases
Not reported
Sponsor
Deutsche Parkinson Vereinigung (dPV)
Start date reported by registry
2012-10-01 (reported)

Registry updated: Not reported · Status last verified by the registry submitter: Not reported

Registry records retrieved 2026-10-14 (UTC). Individual records may have older updates. Recruitment and eligibility must be confirmed with the study team.

Contact the research team

Public study contacts supplied to the registry. Ask whether recruitment is still open and what participation involves.

Catharine Lewis · 0221 478 97435 · catharine.lewis@uk-koeln.de

Study locations

Site status can differ from overall study status. “Status not reported” means local availability needs confirmation. Remote participation and travel arrangements must be checked with the team.

Facility not reported

Germany

Status not reported

The original descriptions and participation rules come from the registry. Participation is voluntary and does not guarantee benefit.