Experiences of Australians Living With Parkinson's Disease.
Experiences of Australians Living With Parkinson's Disease.
Where did the research take place?
The study site has not been established. Author addresses may differ from where the research occurred.
Armidale, AU · Author affiliation
School of Psychology, University of New England, Armidale, Australia, une.edu.Location evidence
GB · Author affiliation · country only
School of Psychology, University of New England, Armidale, Australia, une.edu.Location evidence
Brisbane, AU · Author affiliation
Royal Flying Doctor Service (Queensland Section), Brisbane, Australia.Location evidence
Canberra, AU · Author affiliation
School of Medicine and Psychology, Australian National University, Canberra, Australia, anu.edu.au.Location evidence
A plain-language reading has not been prepared for this paper yet.
Original abstract
This study explores the healthcare experiences of Australians with Parkinson's disease, focusing on healthcare access, symptom management and support networks. Despite the body of research on the experiences of PwPD, there is limited understanding of the specific challenges faced by Australians in accessing and navigating healthcare services. A national survey was conducted, and free-text responses to an optional open-ended question were analysed using thematic analysis to identify key themes in healthcare experiences and barriers. Seven themes were identified: Navigating Healthcare, Diagnostic Experiences, Symptom Experience and Management, Optimism and Resilience, Knowledge and Understanding of Parkinson's Disease, Necessitated Self-Advocacy, and Community-Driven Support. Participants reported difficulties in obtaining timely diagnoses, navigating healthcare services and accessing specialised care. Information gaps and inadequate patient-provider communication were also noted. Peer support networks were highlighted as crucial for coping and resilience, with a notable shift away from traditional familial support structures. Findings underscore systemic challenges in healthcare access and communication for Australian PwPD and suggest that enhancing peer support networks and improving care pathways could strengthen disease management and support.